#tcamp11 Esther Dyson (@edyson) leading a session with M Cary (@boundroid) on Health Data Transparency

More from Transparency Camp 2011 (http://transparencycamp.org/sessions/48/)

Do we have an obligation to publish our de-identified Health Data for the greater good?

[ED: How can we share our data if we don’t control it]

Talking about FitBit and Zeo sleep monitor.

PatientsLikeme.com and genomera mentioned about tracking data.

cochrane.org (UK) and bandolier for evidence-based information.

How can I sum up this session. A wide ranging conversation. 

Consumers need to demand their data. When they have access then they can think about donating their data. 

The Consumer is the de facto Health Information Exchange  and not the emergent State-based Health Information Exchanges.

#tcamp11 How Does Confidential Data Fit Into Transparency discussion

More from TransparencyCamp 2011 (http://m.tcamp.us). The 3:15pm session about confidential data and transparency.


Private or Confidential data categories:

Government Processes:
– Advice/Consultation
– Pre and Post Legal/Enforcement Planning

– Health
— Personally Identifiable Information (PII)
— Personal Health Information (PHI) – Medicare/Medicaid

– Courts

Danger of “Mosaic” 
– You can closely identify people by Gender, Date of Birth and ZipCode

FISMA – Federal Information Security Management Act

Proforma Checkbox v. Risk scoring (more nuanced)

– Are these hidden to protect agencies?
— or to protect political contributors
– Or are they hidden for sake of people at risk?

US Laws:
– HIPAA (Health)
– FERPA (Education)

Playstation Network breach may involve 30% of US Citizens.
70M People’s credit card and other personal information.

How do we present reward to releasing information
– Reflect well on an agency
– Deflect political risk

Efficiency and Effectiveness can have implications for our privacy.

17 Agencies have to ask SSA to validate SSN.

More information is online. Harder to operate incognito. Federal information can have local impacts.

“Who are you afraid of?”

Credit cards companies know more about you than the Government. The Government may have more data but can’t link it as easily.

Private Data:
– Growing enormously

#tcamp11 Public Health Data session in Room 7087

The first afternoon session at Transparency Camp – We are talking about Health Data

Discussion topics:

– How are Health Information Exchanges working?

You can refer to my notes from the Health 3.0 conference – Wisconsin HIE is being used to drive down Emergency Room (ER) use and direct people to more cost effective resources. http://ekive.blogspot.com/2011/01/health3-how-hie-drives-down-er-use-and.html

There is a community on www.data.gov to discuss what data should be available.  These are public forums. The interest expressed in these forums can influence priorities for data development efforts.

How can the community help HHS – The best way is to contribute to the conversations in the community section of the site. Show that there are active engaged citizens.

Divisions inside HHS run almost autonomously. This provides challenges.

Department of Agriculture publishes a  Food Atlas: http://maps.ers.usda.gov/FoodAtlas/
This gives context and enables issues to be localized and encourages action.

Check out the Apps Expo at HealthData.gov courtesy of Health 2.0: http://www.health2apps.com/

Check out http://www.countyhealthrankings.org. sponsored by Robert Woods Johnson Foundation. Allows people to drill down in to comparative health rankings.

Putting data in to context – e.g. Rankings enables people to take action.

#tcamp11 The Government is doing some great things with health data at healthdata.gov – Go Build Your MashUp!

Session 1 at TransparencyCamp 2011

I am listening to George Thomas talking about data that is available on, or via, healthdata.gov

Linked data is being used.  RDF – Resource Description Framework is being used. This makes for a powerful data access construct. A great use of web standards.

Clinical Quality data – Hospital Compare Data.

There are 26 different datasets. Reports and Survey data about customer experience. Looked at as State and National Averages.

For the technical: the data  is available via a RESTful interface. ie. the URL string is meaningful.

e.g.  This is what will go on healthdata.gov in a few weeks:


Data Set : State Payment Values : Date of Publication


Definition : Attribute – Hospital :  Hospital Type

The approach that has been taken offers an incredible resource to slice, dice and aggregate data from different perspectives. This becomes even more powerful when the data is mapped and correlated with other data streams. 

The data has been enriched with Lat/Long information. This allows Geo Data mapping and correlation with other sources. This makes for fascinating integration possibilities. 

The basic message is “Go Mashup this data”

I must remember to lookup the REST Console for Chrome

#tcamp11 kicks off. Big audience and lots of buzz (@tcampdc)

This weekend is TransparencyCamp 2011 at Microsoft’s Chevy Chase offices. Watch out for a flow of posts from the event over the next two days.

Live updates can also be found at http://m.tcamp.us – this works for mobile users.

There is a shared Wiki. Check it out at: http://piratepad.net/tcamp2011

I have two topics I can talk about:

– Health Care Transparency
– Reputation as a means to break down the glass wall between patients and the medical teams that support them.

I put together a couple of presentations to set some context. I will post these to my account Slideshare Account when I get a good connection: http://www.slideshareshare.net/ekivemark

TweetDeck 2 for iPhone – I want to love it, if only it were usable

TweetDeck 2 for the iPhone launched this week. TweetDeck is one of my must have applications. One of the first things to be added to a new machine and an application I spend a lot of time in on my iPhone. So, when it was announced that TweetDeck 2 was available for the iPhone I downloaded straightaway.

I really want to love the app but at the moment there appear to be too many bugs under the covers.

The edit screen has been improved. The @lookup is a great feature that works well when you have lots of followers. But where did the # list go. When you follow a number of events it would be useful to be able to recall a hashtag in the edit screen. Am I missing something?

The drill down feature is very neat and makes it easy to find and add new people and streams.

The biggest problem I have had is that TweetDeck is close to unusable. I have a couple of Twitter accounts, Facebook and Foursquare linked to my TweetDeck account. When I go to load TweetDeck 2 I am getting a “Grey Screen of Death” for 2-4 minutes. This makes TweetDeck 2 completely unusable. 

Hopefully I have found a workaround to this issue. The cause appears to be related to TweetDeck loading it’s streams when it launches. The default screen is the Home Screen. If you have a large number of accounts then this screen takes a long time to load. 

The Fix to “Grey Screen of Death”

The Grey Screen of Death appears to be an extended timeout as streams are loaded. I managed to overcome this problem by moving my Home screen so that it was not the first screen to load. I moved the “Me” screen to the front of the columns. Now at least TweetDeck 2 appears to load faster. 

I think TweetDeck 2 needs to be modified so that the Title bar with the column heading the “+” add and New Tweet button are available immediately. If the App gets in the way of being able to Tweet quickly it will #FAIL.

While talking about bugs there is an interesting one in the Account Screen. When I first loaded TweetDeck 2 there was a blank Twitter Account as the default account. I couldn’t determine what it was. It didn’t appear to be an account of mine. It looked more like an open Twitter stream. 

I removed this account and then wanted to reorganize the list of accounts to get my @ekivemark account at the top. Pressing the Edit button and then dragging the accounts is easy. But there is a bug lurking in there. Once you reorganize your list of accounts try drilling down in to the details of each account. You are in for a surprise! The drill down shows the details of the account that was previously in that position in the list. Let me explain. If my Twitter Account was in Position 3 and my Foursquare account was in position 2. When I swap the sequence, after the change when I select my Twitter Account in Position 2 the next screen lists the Foursquare Checkins.

All in All…

TweetDeck 2 is certainly an interesting rewrite of TweetDeck. There are bugs to iron out and if you reorganize your columns to move the Home Screen you may find that the App is usable while the TweetDeck team work out the frustrating time lag issues that appear in different places.