#hcrt Institute for Federal Health Care Patient Centered Roundtable

On Friday March 4th, 2011 I attended a roundtable event organized by the Institute for Federal HealthCare and Lifetime Health Diary. The topic -Patient Centered Health Care. The title:

“The Healthcare IT Puzzle: Something is Missing… Oh, Yes, The Patient!”

Thankfully the invitation only event had invited some great patient advocates such as Amy Tendrich of DiabetesMine, Dave deBronkart aka @ePatientDave and Regina Holliday (@ReginaHolliday).

While there was no Wi-Fi available at yet another Health care oriented event and Clearwire 4G service wasn’t penetrating the building we were able to get cell phone access. This meant that a number of us at the event were tweeting from our phones. 

Since Twitter tends to forget Tweets after about a week I thought I would capture the tweets and include them in a post here. If you want to do your own search on Twitter we used the hashtag #hcrt for the session.

If you find the conversation interesting you should plan to attend a HealthCamp event and continue the conversation. It looks like a number of us will be going to HealthCamp San Diego on March 20th, the day before the Health 2.0 Spring Fling.

For other insights check out Ted Eytan’s blog. Ted captured some great photos that demonstrate clearly how the patient changes everything.

Here are the tweets as of March 8th, presented in reverse order. Newest tweets first.

#HCRT

 Mark Scrimshire 

And changes for better! RT @: Photo Friday: The patient in room changes everything. Everything.  
 HealthCampHQ 

And changes for better! RT @: Photo Friday: The patient in room changes everything. Everything.  
 tedeytan 

Photo Friday: The patient in the room changes everything. Everything.   @@ @
 tedeytan 

2011 IFHC Roundtable “Where’s the Patient” – Photos on Flickr @ @ @ @ 
 Sherry Reynolds 

Tracy Gaudet, MD new VA Office of Patient Centered Care and Cultural Transformation  via  @
 HealthCamp San Diego 

woohoo! RT @: RT @ @we are part of a healthcare change tribe 
 Matthew Browning 

RT @ @ we are part of a healthcare change tribe
 Karen Herzog 

Like minds. Enjoyed teaching @ last week. RT @: Teaching @ twitter. Never too late  
 Karen Herzog 

Precisely! RT @ listening to the siren song of @ about bringing life into health.
 Mark Scrimshire 

 and now I am off to ski. A little free skiing before teaching
 DiabetesMine 

@ Thx 4 Twitter stalking  event today! @@ @ @ @
 Erica V. Olenski 

RT @: Ask young people what they would change in the health care system to make it better. Get folks asking questions.
 David Harlow 

 have you seen the IBM presser re its new pt/doc portal? If it can deliver, addresses many open Qs  (what’s?)
 HealthCamp San Diego 

RT @ we need the accountable patient. We have to make people want to do what is right
 Mark Scrimshire 

 2 proxies for healthcare medical record and bill. Most effort went in to the bill.
 DiabetesMine 

While @ is in D.C. speaking at , she’s blogging about diabetes burnout: 
 Mark Scrimshire 

 we have a sickcare system. Follow the money. 1b tx/yr
 Mark Scrimshire 

 get involved in my health and wellness not my illness
 Katerina 

@: getting together as a tribe, learn. Let’s have a snowball rolling! 
 Mark Scrimshire 

 @ we are part of a healthcare change tribe
 HealthCamp San Diego 

@  
@ what is  ??
 Mark Scrimshire 

 mutually reinforcing behavior change
 Mark Scrimshire 

 Tracy Gaudet: transformation is not just making it better.
 Katerina 

@ Alex, thank u for coming! 
 Katerina 

@ @ @ @ @@ Nancy we’ll send out the emails with everyone’s contact details 
 Mark Scrimshire 

 how do we get the buy-in? How do we make it relevant to us all
 Mark Scrimshire 

 our medical info is currency. It is valuable. But patient currently gets no benefit from transactions using their info
 Alexandra Drane 

 @…the idea of making the third person in the md office the info you stored on your phone….hey – thats smaht!
 Lygeia Ricciardi 

@ : build tools for mobile… And make them simple. 
 Dave deBronkart 

@ urges  “Develop for mobile.” I’m stunned. 🙂
 Mark Scrimshire 

 we need the accountable patient. We have to make people want to do what is right
 Mark Scrimshire 

 data stewardship with patient at center. Get at the richness of transactions that is currently missed
 Katerina 

Finances, cost-benefits, making it relevant to ppl 
4 Marekivemark Mark Scrimshire 

 ask your kids. What would you do to improve healthcare. Show you care.
 Sherry Reynolds 

Patient centered care  Mom takes 3 year old to urgent care.. Dad logs in remotely to see visit notes. 
 Mark Scrimshire 

 make it easier, make it interesting
 healthythinker 

RT @: RT @ learn from integrated systems like @ – every patient leaves with an after visit summary
 Perficien
t Health IT
 

RT @ learn from integrated systems like @ – every patient leaves with an after visit summary also viewed online
 Katerina 

@: create 2nd page: so what? 
 Mark Scrimshire 

 @ 1 page also needs a so what page
 Sherry Reynolds 

 learn from integrated systems like @ – every patient leaves with an after visit summary also viewed online
 Mark Scrimshire 

 @ promote shared decision making.
 Katerina 

@: shared decision making 
 Mark Scrimshire 

 @ is going to get a phr. Yehaw!!
 Katerina 

@: info symmetry, cost visibility, transparency, education n training for patients 
 health gist 

 ??? @ Worlds tops moving once the doctors find out the patient has an Alsheimer 
 Mark Scrimshire 

 @ info symmetry in real time. Tap the patient community.
 Steve Downs 

great point RT @: My nintendo WI knows my BMI for two years not my doctor -Ted Smith 
 Katerina 

Worlds tops moving once the doctors find out the patient has an Alsheimer 
 Mark Scrimshire 

 rethink clinical workflow. How do we deal with patient and not just disease. Need education for care givers
 Katerina 

Transparency and putting everth on one page 
 Mark Scrimshire 

 regulatory: long term personal health insurance. Transparency. Make access mobile. Make it simple. Build it to be shared.
 Alexandra Drane 

 @ hold up standards with fervor…be a standard bearer
 Mark Scrimshire 

 put it all on 1page. Transparency. Access.
 Katerina 

Ted Smith: work with what works 
 Mark Scrimshire 

 @ we need standard bearers.
 Mark Scrimshire 

 @ squeeze HHS for ace care coordination mandate. Publish provider error rates. Support patient involvement in outcome defn
 Katerina 

@ no, its not on the slideshare – I will deff upload it there. Will send guys a link to that 🙂 
 Alexandra Drane 

 ted smith…i have a higher allegiance to my nintendo wiii than my doc (OF COURSE YOU DO! The Wii is FUN!)
 Mark Scrimshire 

 we need to make it easy
 Mark Scrimshire 

 we buy healthcare like car insurance. Need to treat it more like a personal pensions
 Lygeia Ricciardi 

Ted Smith: it’s important to recognize the progress we’ve made in transforming the system.  look to other industries for inspiration
 Mark Scrimshire 

 disease management is like retirement planning – Ted smith
 Alexandra Drane 

 chronic disease looks a lot like a retirement plan…
 Mark Scrimshire 

 Ted smith: be proud of progress made. Even if route is not one planned. Now look outside healthcare for ideas
 MsWZ 

RT @ Why Innovation Is So Hard in Health Care – and How to Do It Anyway  / Great read!  
 Mark Scrimshire 

 lifetimehealthdiary we need to be on the same page. Lifestyle, meds/tests, symptoms.
 Mark Scrimshire 

Yes +1 RT @: @: we need to have a real time information 
 Mark Scrimshire 

 we have a level of cognitive dissonance. That’s a compliment folks!
 Informatics4CH 

Following  roundtable dialogue on HIT and patient engagement. 
 Katerina 

@: we need to have a real time information 
 Sherry Reynolds 

@  
@ good work! Dang those disruptive patient and consumer advocates insisting that we have the same access to info
 Mark Scrimshire 

@    
@ no wifi at  doing best we can to spread word
 Mark Scrimshire 

 healthcare is like medieval times when the establishment believed sun circled the earth. Healthcare is the earth. Patient is the sun
 Dave deBronkart 

Repeat: I’m rapidly & profoundly losing interest in expertise about why our system doesn’t work. Want to visit systems that do! 
 Sherry Reynolds 

No live coverage of another inside the beltway meeting on patient engagement.. Where are grass roots orgs? 
 Mark Scrimshire 

 @ we need policies that promote information symmetry. Ie 1 side should not be at info disadvantage.
 Katerina 

@: information symmetry should be there 
 Mark Scrimshire 

 @ @ social networks are empowering patients
 Mark Scrimshire 

 @ we need billing transparency
 Kourtney Govro 

RT @ @ we need visibility to infection rates. Part of informed decision making for patients
 Katerina 

@: meaningful use for the patient is transparency and cost 
 Mark Scrimshire 

 west Europe healthcare success came from confidence consumers had that they could access their information. Lightbulb moment
 Mark Scrimshire 

 meaningful use: a guide is available. Not a cars of doing same bad process faster.
 Mark Scrimshire 

 era of meaningful use: diff expectation of future healthcare
 Mark Scrimshire 

 Josh Seidman meaningful use will include using patient generated data
 Mark Scrimshire 

 50-80% forgotten from a patient visit. Follow up is critical. The uRL is a prescription!
 Mark Scrimshire 

 Josh Seidman meaningful use includes engaging patients and their family
 Katerina 

@: America needs a patient–n-chief 
 Mark Scrimshire 

 @ we need visibility to infection rates. Part of informed decision making for patients
 Mark Scrimshire 

 we have to fund patient engagement that INCLUDES patient
 MsWZ 

RT @  direct connect and the blue button have great potential to free data for patients //I love Blue Button! 
 Mark Scrimshire 

 what learned: $98B in childbirth costs and no transparency to billed items. I want Tripit for health. Who will help me build it?
 Mark Scrimshire 

 direct connect and the blue button have great potential to free data for patients
 Faisal Qureshi 

+1 RT @ healthcare folk, in general, imho, are extremely talented at admiring problems. DO SOMETHING!
 Mark Scrimshire 

 Mark Scrimshire 

 we have to work out who pays for innovative solutions. Health plans and employers better chance than consumers
 Katerina 

@ thx so much for coming! 
 Mark Scrimshire 

 physician selection is a social activity. Industry doesn’t help.
 Mark Scrimshire 

 stumbling blocks: incentives, structuring of data
 Katerina 

How much can u rely on patients? 
 Lygeia Ricciardi 

@  
@ would love to talk birth w/you!  is a roundtable on importance of patients in  spons by institute of federal healthcare
 Mark Scrimshire 

 patients must produce their own healthiness
 Mark Scrimshire 

 consumers will have to do more
 Amy Romano 

@ 
@ I’ll have 2 hear your birth story when I see you at. btw what’s ? – looks like I should follow. thx @
katekson Katerina 

Lygeia: evidence-based medicine, needs to be a transparency there
 Mark Scrimshire 

 vitality is about taking personal responsibility
 Mark Scrimshire 

 @ we also need access to not just our own health data but also evidence data
 tedeytan 

 @ telling a personal story that’s compelling around perverse incentives. Watching the MD’s in the room’s faces.
 Mark Scrimshire 

 @ convenience in healthcare – for who? Provider or patient?
 Mark Scrimshire 

@ wish you were here!  ðŸ™‚
 Mark Scrimshire 

 another healthcare meeting without wifi… Thankfully 3G and the iPhone works.
 Katerina 

Lygeia: collaborative interaction is the best 
 Mark Scrimshire 

 how do we get patient engaged unless they are dealing with a condition?
 Katerina 

Dan Tietz: time is a barrier. Doctors do not have time 
 Lygeia Ricciardi 

@ 
@ @ @ @  what most valuable contribution can we make today?
 Mark Scrimshire 

 how do we get patient to the table when redesigning healthcare.
 Katerina 

@ very true! This is a power of twitter! 
 Alexandra Drane 

 @ healthcare needs to be about living…as opposed to about not dying. Hot damn i heart ted!
 tedeytan 

 listening to the siren song of @ about bringing life into health.
 Dave deBronkart 

I meant losing interest *in expertise* about why today doesn’t work.
 Mark Scrimshire 

 barriers: time, trust, understanding.
 Mark Scrimshire 

 let’s continue this discussion at  /  see for calendar and links
 HealthCampHQ 

 let’s continue this discussion at  /  see for calendar and links
 Dave deBronkart 

I am rapidly and profoundly losing interest inexpeetise about why our system doesn’t work. Want to visit systems that do! 
 Mark Scrimshire 

 We don’t use e-tools unless they have relevancy and usefulness.
 Mark Scrimshire 

 Tracy gaudet’s role at VA includes cultural transformation. That is a key part of the puzzle
 Katerina 

Thank u so much @ I have my phn back 😉 
 Mark Scrimshire 

 innovation in healthcare is a long march
 HealthCampHQ 

 innovation in healthcare is a long march
 Alexandra Drane 

 healthcare folk, in general, imho, are extremely talented at admiring problems. DO SOMETHING!
 Alexandra Drane 

 @ docs are the most expensive transcriptionists in the world
 Katerina 

@: health is private, wellness is social. I
want to be able to tweet n have the tweets automat populating my PHR 
 Katerina 

@: reach out, pick up a person, inspire! 
 Katerina 

Oh no my phone is dying..
 Katerina 

@ : let’s unleash the innovation, making pretty report is not difficult 
 Katerina 

Lygeia Ricciardi: lack of fin incentive. How can we use tools to shift the system?#hcrt
 tedeytan 

 @ “we are obsessed with this (patient centered care)” so true. “how do we create a world that’s beguiling”
 Katerina 

@: patient is health info exchange 
 tedeytan 

 @ talks about there being “no health care team” in diabetes. Very important.
 Katerina 

@ doctors do not have an incentive to share the records 
 Mark Scrimshire 

 the healthcare team is a myth. Most people are on their own
 Katerina 

Dan Tietz: I don’t c a big focus on patient portals. Vendors don’t concentrate on them 
 Mark Scrimshire 

 @ let’s choose something we can work to change.
 Katerina 

 @ let’s start changing our behavior now!
 tedeytan 

We did it! Patients change evrything. Everything. @(pic)  ???
 Mark Scrimshire 

 transparency is essential to empowerment and patient centricity
 Katerina 

@: let’s redesign the room now, get rid of the tables – n this s a beginning of a behavior change 
 Mark Scrimshire 

 @ causing change – again! 🙂
 HealthCampHQ 

 @ causing change – again! 🙂
 Mark Scrimshire 

 what word is better than patient. Patient does not define us. @
 Katerina 

Trace Gault: System is not designed in this way to take care of disease. Patient is not involved 
 Mark Scrimshire 

 patient choice is implicit in a patient centric approach
 Katerina 

A great group of people here at @ePatientDave@ReginaHolliday@ekivemark@adrane@tedeytan@DiabetesMine
 Mark Scrimshire 

@ great to have you here 
 Mark Scrimshire 

 @ green button for data donors to support testing of interfaces. Great idea!
 Katerina 

@:we have rules and tools now 
 Alexandra Drane 

 listening to @…sitting next to @ …life is good.
 Mark Scrimshire 

 @ lots of crazy good things happening. But not time to declare victory. We have fuel and rules. Now go build!
 tedeytan 

Teaching @ twitter. Never too late 
 Mark Scrimshire 

 @ empowered engaged equipped. Reality is patients can do things now that were impossible before Internet
 tedeytan 

Tracy Gaudet, MD has a great job! Office of Pt Centered Care and Cultural Coordination at the VA 
 Katerina 

@ @ @ thx for coming! Great start of 
 tedeytan 

 i wish i wasnt sitting across a room from @ and @ (pic) help us troubleshoot! 
 HealthCampHQ 

 why do you want to be healthy? We must move the system from focus on disease to vitality
 Mark Scrimshire 

 why do you want to be healthy? We must move the system from focus on disease to vitality
 Matthew Browning 

RT @: @ We have a amazing and divese group talking patient care at the IFHC meeting 
 Gilles Frydman 

@ 
@ @ Have a good IFHC meeting They won’t reimburse travel. Cannot justify the expense for 4 hrs:-(
 HealthCampHQ 

 Tracy Gaudet massive opportunity to put patient at center. Transformational!!
 Mark Scrimshire 

 Tracy Gaudet massive opportunity to put patient at center. Transformational!!
 Mark Scrimshire 

 for the roundtable discussion. Which is kicking off now. Starting with mc stan pappelbaum
 HealthCampHQ 

 for the roundtable discussion. Which is kicking off now. Starting with mc stan pappelbaum

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