The Wrap up from Health 2.0 Spring Fling.Indu: How do we get to Better – How do we scale and achieve cost impacts. Stakeholders are starting to collaborate.
How do we match the people with the need to those with the solutions.
[Ed: That echos @DermDoc’s comment about engaging the Docs in the Health 2.0 movement] How do we leverage collective learning. How do we reduce redundancies. Matthew: Worried about spending $30B and not moving the needle in Health IT. It will take a lot of effort to change primary care. Research realises that their world has been blown up. We need to get the core of HealthCare to realize the same thing. [Ed: Consumerization of Health leveraging Web, Mobile and Social will transform HealthCare dramatically. Are you ready?] Health Innovation Week September 17-27th, 2011 in San Francisco. Donate to the Health 2.0 Relief Fund. Got to FirstGiving.com
How are We Going to Make a Difference?
Liberty is to the collective body what Health is to the individual – Thomas Jefferson
Consumers are the most under utilized resource in the health care system. And they vote 3 times a day + snacks.
Great panelists for the final session.
No one is big enough to be independent of others. – Father of Mayo Founders
David Rosenman giving Kudos to Washington for their leadership in health reform
Lygeia: We are not just treating the physical body. We have to deal with the emotional side.
Margaret: How do we bring great entrepreneurs to Health Care. [Ed: it’s what we call http://healthca.mp]
David: Organizations can’t afford to be independent of others. The potholes are if organizations think they are big enough to act alone.
Lygeia: Health 2.0 is a movement
Margaret: Taking ideas to demonstration. Then Taking Ideas to Scale. We need to work on the latter. How do Foundations invest with synergy. How do we create a sustainable innovation ecosystem. Great ideas to market adoption.
Stephen: Improving health requires advocacy in other non-health areas. eg. housing standards.
Health Impact Assessments for big developments. RWJF popularizing the concept and developing guidelines and standards. Source data will be environmental and Observations of Daily Living – Not the Medical Record.
Now the final wrap up by Matthew and Indu
Health2News.com is now launched.Home page now links to a landing page rather than the conference page. Health 2.0 Technology Guide will capture Applications in the Health 2.0 space. User Profiles work across all sites.
Making Health Care Cheaper
GiveForward – like kickstarter for Health
Enabling people to raise money towards health costs. This helps families meet the non-covered costs for major health care events.
People can donate and leave words of encouragement.
Arnie Milstein Professor of Medicine and Director of the Clinical Excellence Research Center, Stanford University
The real cost of care is hidden to all that are involved in giving and receiving care. It is completely invisible.
[Ed: Saying that the Health Plan knows the cost is not exactly true. Surely it is the billing department in the hospital or Doctor’s office. They end up charging different costs based upon situation. Cash settlement, In network, out of Network, Medicare]
Dealing with chronic diseases is 50% of costs in the US Health system.
Things to do:
– Show that a patients health matters
– Make following a care plan easier
– Specialists vary in use of health resources to deliver care. We need help to measure care effectiveness.
Health Reform has made the Medicare data accessible. Opportunities for developers to make sense of this effectiveness data.
Primary Care Coaching model. Focus on a subset of patients with multiple chronic disease. Key to engagement is a human being. instead of a Nurse in a call center they are in the practice to meet face-to-face with patients.
The EMRs are useless – they don’t improve care or lower costs. Tools are need to help with outreach.
Need tools to monitor the population.
Consumer direct model. REinventing the payment and delivery model. Outside the insurance market. approx. $65/month in place of insurance.
This is typically coupled with a High Deductible Plan. The net savings are often around 50% when these costs are combined.
Their system reduces ER visits by 65%. Inpatient by 40%. Open 7 days/week and 12 hours/day to provide easy access.
Working with large hospital systems. We have a shortage of properly used primary care physicians.
Rise Health addresses cost and access.
nology to take low value tasks off the Doctors plate.
nology to take low value tasks off the Doctors plate.
Why now – Because we have our backs against the wall. Cost increases are unsustainable.
We will see change if Medicare reimburses based on results rather than volume. Affordable Care Act is setting the stage for this.
Here are some lightweight technologies:
Working with Health Systems in the ER direct patients to more appropriate care settings.
The patient’s Medical Card as their Health Record. USB flash card embedded in a card that can be the patient’s medical card. The software loads via USB to point to an online health record page.
Nice interface with BlueButton to enable doctor download of data.
Arnie: we need tools to make it simpler. We need to go further.
[Ed: what Arnie is saying – The Doc wants Ques to act on not be deluged with data.
The Humetrix Blue Button process just provides Data Deluge. There is a massive opportunity to provide Doctors with tools to manage the data deluge and enable them to act effectively on the essential data and the exception indicators.
Eric: We are pushing to replace Paper and Process Anarchy with Digital Anarchy. No anarchy is the same across hospital systems. They each have their own anarchy.
Creating Infrastructure Independent Care.
Right Treatment, Right Time, Right Place.
SensorBaby – measures remotely at 96% of accuracy of hospital monitoring.
Bluetooth kit. iPad App to capture and display data.
First deployment will be in Mexico. This can be deployed to trained health workers. The kits cost is around $150. Not yet FDA Approved.
Self service technology is popular with consumers. This needs to move in to health.
Coinstar/RedBox just invested in SoloHealth.
Kiosks are networked. You can use any kiosk.
30M people a year are at risk of vision loss.
Arnie: Will improve access. Will they improve cost – TBD
Norm: Data is invaluable in the Medical Home.
Rushika: It is crazy how we manage chronic disease using 3 month snapshots in the doctor’s office.
Raw data streams are not useful but monitors that evaluate the stream and point out exceptions are useful.
More from the afternoon session of Health 2.0 Spring Fling.
The Health 2.0 Developer Challenge Showcase
20 Challenges have created about 130 submissions from teams.
HHS is at the forefront of releasing data to change HealthCare. This is historic and inspiring. Part of the 10 year Healthy People 2020 vision.
Want to make data come alive at the community level.
Challenge was to move from paper-based to web-based approach. HealthyPeople.gov is live
@ToddPark as vibrant and energetic as ever!
And the winner for the MyHealthy People Challenge is….
3rd: IQ Solutions – MyHealthyPeople
2nd: HHN Public HealthLine
and the winner is…
1st: Healthy Communities Institute
Next Challenge: Provider Quality
Hospital Quality Compare CGI: http://health.cgi.com/hhshospital/default.aspx
Next Challenge: Community Cancer Challenge
– Geographic Awareness of Cancer Tool
– OZIOM – locally relevant cancer information to african american communities.
Indu: The Developer Challenge is agnostic to who poses or participates in a challenge.
Microsoft – Windows Azure Datamarket. Challenge is getting interesting underlying data. Worked with Practice Fusion.
“Democratization of Data” – Healthcare is the least democratized data set.
De-identify the data and expose to developers to discover trends.
Team Epicenter was the winner that used 15,000 Practice Fusion records.
Epicenter helps find, analyze and address emerging Epidemics.
Kristi Miller from American Heart Association. Optimal Cardio-Vascular Health. Good Food Choice.
Health-based Food Swaps to help you reach your goals.
Amy Romano – Childbirth Connection – Maternity Care Quality
Team BigYellowStar is the winner.
The team have already launched a site to look at water quality.
And now for the live Code-A-Thons…
3 Cities: Boston, SF and DC
8 finalists come to the Health 2.0 Spring Fling: http://ekive.blogspot.com/2011/03/health2con-developer-challenge-code.html
Boston was first attempt at DIY devices in conjunction with O’Reilly and MAKE:
People’s Choice Award: Team Maya – Food Oasis Project addressing Food Deserts.
Runner Up: Team Free Health
Connecting people to free preventative services (as demanded under the Affordable Care Act)
And the Winner is…. Team Triangle
Using the Microsoft Xbox Kinect to diagnose abnormal motion problems.
This is an amazing use of consumer technology to solve a real and widespread problem.
There are still existing challenges running:
– Lucile Packard Foundation for Children’s Health. Go V
– Engage With Grace.
More from Health 2.0 Spring Fling
The Future of Research
What are we concerned about: Data
Who is involved: Researchers
How do we change research while respecting the history and sociology of Research.
Research is an analogue world.
Researchers find the question then go corral data to get to answers.
What is changing is that data is now being generated as a result of care. Data has gone from rare to abundant. From expensive to cheap.
This is profound disruption.
Trust becomes an even more important element.
Research has a branding challenge. Research is becoming learning.
Only a few may be researchers but we are all learners.
Learning is influenced by roles and perspective. e.g. Doctor as Patient brings a whole new perspective.
Research is insight from data.
How do we take research cycles from 17 years to 17 minutes?
Facing a life expectancy of 7 years and unwilling to accept this limit Josh started a foundation to move research forward.
Chordoma Foundation was established to promote collaboration amongst researchers.
Gone from a handful of researchers to 170 across the world.
Licensed cell lines to 30 labs around the world from a lab in Germany.
This is jump starting research.
2,000 patients with the disease. No one hospital sees a large number of patients. This doesn’t give critical mass in one place. The foundation helps to address this.
Access to funding
Access to raw materials
Access to Tools for collaboration
Just held the 3rd annual Chordoma conference. Sparks of enlightenment flew when different experts collaborated. [Ed: this is why http://healthca.mp is so important – the diversity of experience and perspectives]
Peer review process. 1-3 year delay due to submission and distribution process.
Patient Conference: two parallel workshops – 1 for researchers and 1 for patients and their families. Then get them to overlap.
On a campaign to get 1M women to contribute to Cancer Research
47,000 women die of Breast Cancer. Same as 20 years ago.
We need to move from cure to identify and eradicate the cause.
350,000 Women have joined (80% don’t have breast cancer)
Email blasts to this army. Dis-intermediate the medical industry. They don’t do research well. They get in the way.
Biggest complaint is that there is not enough research.
$1,500 to perform a study. Not typically clinical trials.
Starting to expand beyond Breast Cancer to other diseases.
Cancer Commons – a platform for collaboration.
Large clinical trials are deeply flawed.
Many cancers may be genomically unique.
Population death rates 5% drop in 60 years.
Cancer Commons is open source, real time research.
600,000 Americans die of cancer each year.
Personalized Medicine = Genomically informed Medicine = Medical Research with a unit of 1 = What a doctor practices with his patients every day.
(And a great participant in HealthCamp – http://healthca.mp )
ACCOR is the oldest listserv for cancer in the world.
ACCOR is partnering with 23andMe to give Cancer patients access to genomic information.
Even small incremental improvements (through initiatives like Cancer Commons) have big impacts.
ACCOR helped Novartis speed up drug approval by 2.5 years. First year sales of $1B means the time saving had an enormous impact.
Clinicians sometimes push back against guidelines because it implies a de-personalization of medicine.
We are on the cusp of personalized medicine.
[Ed: The patient’s data needs to be incorporated in to the data on which decisions are based.]