We hold the keys to better health

Jim Marks posted a great article on The Health Care Blog: Health Insurance Doesn’t Necessarily Mean Better Health.

The choices we each make have a profound effect on our health. As Jim points out:

Although genes and medical care are vitally important, we’re increasingly understanding that where we live, learn, work and play affect our health even more. That is clearly what we saw last year when we released the first look at what factors affect health in every county of the nation.

What we eat, the quality of the education we provide for our kids, the housing and community all have an impact. When we couple those factors with a Life Record that helps us track health, habits and well being we have the building blocks for a life of vitality.

More healthcare doesn’t automatically equate to better health. We need to pay closer attention to our vital signs and overall well being so that we can seek medical attention when it is appropriate.

Why don’t you come along to one of the upcoming HealthCamps to discuss this and other aspects of engaged health. 

HealthCamps are taking place in San Diego, CA, New Haven, CT and Tampa, FL:


We need a Life Record. An EMR misses the symptom information that leads us to needing an EMR

Meaningful use start’s with Patient Data. Not Data about the patient but rather – The Patient’s Data. As in “the Patient OWNS their data.” 

If you want to understand the importance of the Patient owning and having automatic access to THEIR health data just take an opportunity to listen to @ReginaHolliday’s story of how she lost her husband. 

I was at a Social Media event last night and jotted some notes from Regina Holliday‘s talk. ( http://ekive.blogspot.com/2011/02/tbos-reginaholliday-thoughts-on-patient.html ).

That discussion drove home the fact that we don’t know what needs to be in our PHR. We need a life record not a medical record. Then we need tools to be able to evaluate the data points we collect and look for meaning. 

A life record would hold the clues to the symptoms that prompted us to visit a physician or hospital which would result in information being added to our medical record.

#TBOS @reginaholliday Thoughts on Patient Access and Social Media

Regina Holliday tells the moving story of the loss of her husband.

Regina, encouraged by her husband Fred, joined Facebook to help organize a child’s birthday party.
From Jan to March 2009 Fred’s condition deteriorated with bone breakages and multiple pain medications.

An Open MRI revealed metastasis that had spread everywhere.
Fred was hospitalized in 5 facilities in 11 weeks. He only had wifi access in 2 locations.
To get Fred’s medical record would cost 73 cents per page and 21 days to get a copy.

When they finally got a medical transfer they were sent with an out of date and incomplete medical record.

One reason for denying access to a medical record: “Patients aren’t educated enough to understand it”

“Twitter gave me access to a Doctor willing to tell me the truth”

Facebook as PHR – 10.7% of Facebook posts made by Fred Holliday were relevant to his kidney cancer.

Social Media and Art came together to promote patient access to their medical data.
@ReginaHolliday – Meaningful Use now demands patient access to their data in 3 days. An outcome of her advocacy at ONC.

#TBOS Rory Cooper – The Heritage Foundation and Social Media (@AmericanU

Rory Cooper – Director of Strategic Communications, The Heritage Foundation 

Social Media isn’t about getting the most followers. It is about engaging people in topics you care about.

The Like Button is a starting point for a conversation.  How will you interact with the people you connect with.

How do you deal with the believers and non-believers.

Facebook growth far surpasses any previous media channel. 

The point is to work out how to interact with the people who have connected with Facebook. 

Facebook >500M users
50% log on every day.
Heritage Foundation has over 301,000 fans. This is 50% more than the RNC (200k) and DNC (209k).

People connect on networks like Facebook to do something.

Twitter has 175M users (growing at 300k/day.

@Heritage has 106,000 followers and growing.

Twitter is THE place for breaking news, #mobilization and online debate.

First thing Rory did when joining Heritage was to turn off the auto feed and instead engage in conversations, answering questions.

Twitter is a source of information on what candidates, organizations, congress members and the White House are doing.

In Wisconsin both sides of the debate are engaging using the same hashtag. 

Heritage has 115M impression in Q3-4/2010. 400K clicked through to the web site. 550k clicked though to the web site from Twitter in the same period.

YouTube. 50k people watched a video on the Wisconsin public union dispute. YouTube is the big player in presidential debates, press briefings. YouTube will become even more important in the run up to the next presidential election.

Video brings accountability. Everybody is videoing themselves and their opponents. Less is going on behind the shadows.

There are many more choices of social media outside the big three (Facebook, Twitter, YouTube). Pick a couple of the outliers. Understand where your audience is.

Bloggers are new media with substantial influence. Heritage meets with bloggers in a round table every week.

Email is still relevant. The morning Bell newsletter is a daily email with 170k readers and a 35% open rate.

Success requires:
– Engaging with a community
– Get feedback from them
– Stop what doesn’t work

The channel (F-T-Y)  doesn’t matter – the people that use these channels will still be around regardless of which channels survive.

Heritage’s bloggers are their policy people. They have realized that they get more exposure through blogging than through just a white paper.

Most of 300k FB fans are from organic growth. FB ads were used to get about 1,500 users but can be highly targeted.

Heritage is developing a process to identify their “Super users” i.e. the high impact  influencers.

A blogger or Social Media Influencer can be far more powerful than a regular journalist.

Social Advocacy at American Progress with @reginaholiday #TBOS

We are here at American University – Butler Boardroom supporting Regina Holiday who is featured in:

Robert Fine introducing Dr. Alan Rosenblatt (@CAPAction and @DrDigipol) talking about Social Advocacy at the Center for American Progress.

Talking about using Social Media at the Center for American Progress Action Fund. 

Social Media is the driving force fo advocacy rather than an add-on. 

Old style advocacy was using email. A closed loop system and no one knew what happened. Did supporters take action. Did the recipients in congress act on emails received?

By leveraging social media everyone gets involved. Everything is in the open and can’t be ignored.
Act.ly tracks mentions – the equivalent of a signature.

Also using Facebook pages for members of congress. A constant flow out in the public eye. 

Center for American Progress has blown up it’s influence model. A whole new group of influencers have come in to play.

Who do people trust?

Academic experts are the most trusted in North America. 
Peers (people like us) NGO’s and their representatives are the next most trusted.

American Progress has developed multiple brands on Twitter. They have also developed twitter channels for the staff behind the brands.

Social Advocacy can be best used to target a committee, swing voters in congress rather than the entire congress.

Facebook posts stay on the wall longer. Twitter is more transient.

Clicking the Like button is the price of admission on Facebook.   
Multiple channels have an additive impact when combined. One channel doesn’t have to replace another.

YouTube – Video is powerful. It is a host rather than a channel.  
“Viral is a phenomenon and not a strategy”.
A word of mouth campaign is needed.  If all the signs align it can then have a life of it’s own. ie. it become’s viral.

@Tweetdeck for iPhone crashes – my cure

For a while my copy of @Tweetdeck on my iPhone has been regularly crashing. I could cause a crash with ease. All it needed was to hit the Refresh button and the app would quit back to the Springboard menu. Today it got even worse. Tweetdeck would not even load on my iPhone. I tried restarting my iPhone – No dice. I could no longer access Tweetdeck. My next step was to sync my iPhone with iTunes. Another restart of the iPhone and still no dice.

The final step that I took was to delete Tweetdeck from my iPhone and re-install. This seemed to fix the problem. After going through the re-install process and re-syncing with the Tweetdeck servers my search columns were back. What’s more not only does Tweetdeck load but now the refresh button works without crashing the app.

So, if you are having problems with Tweetdeck on the iPhone try deleting the app and re-downloading from the App Store.